Shine Your Light This Holiday Season
Nov 1 - Dec 31: We are partners with Style & Give. PFF supporters can donate clothing/fashion items by obtaining a pre-paid label and Style & Give will donate up to 60% of the value directly to PFF.
YOU DID IT!
We are thrilled to announce that, with your help, we were able to hit our generous donor’s match of $100k AND officially raised OVER $1.3 MILLION for our 2nd Annual Family Jamboree!
We could not be more grateful to our generous sponsors, donors, and ALL of you who have supported us in our mission to #ENDNF. We have a lot of exciting initiatives in the works for the Fall of 2024 and your funding will continue to support the critical research needed in the NF field and enable upcoming projects included in the link below.
2024 Fam Jam Highlights
About Penny
Penelope Griggs Doerge (June 29, 2006 - November 10, 2022) was a talented artist, fashionista, world traveler, social media influencer and the founder of “Glam Camp”, a summer program for young girls. In just 16 years, she lived a life full of purpose, passion and joy, and through her actions showed countless others how to live with grace.
Penny was a model of resilience, positivity and courage. Diagnosed with neurofibromatosis (NF1) as an infant, Penny never let this define her or hold her back. She lived her life “Walking on Sunshine”, in the words of her favorite song. Penny made an impact everywhere she went by shining her bright light. She was an inspiration and a teacher to people of all ages.
Penny is the daughter of Chad and Kate Doerge who created the Penny’s Flight Foundation shortly after Penny’s death in November 2022. The Foundation was created to advance medical research in NF1 and its related disorders, and to inspire others to live with positivity and humor and find the beauty and joy in all situations.
The Penny Doerge Adaptive Academy at HSS
The Penny Doerge Adaptive Academy (PDAA) at Hospital for Special Surgery organizes local, regional and national adaptive programs for kids and teens facing a range of disabilities. These events help patients realize new skills and interests, reinforce therapy goals and allow patients to socialize with other patients. Examples of past PDAA events include skiing, surfing and indoor rock climbing. These experiences encourage mobility and independence and often result in increased self-esteem, self-confidence and motivation to live fuller, more active lives, just like Penny did.
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